Families
Accessing quality information is an important part of understanding and managing chronic pain. The SKiP team have put together some resources that families may find helpful.
Resources & Fact Sheets:
๐บ Return to School Factsheet
๐บ Activities for CRPS
๐บ My Pain Toolkit for Teenagers
๐บ A Journey to Learn About Pain (comic
๐บ Joshua W. Pate – Zoe and Zak’s Pain Hacks Books
๐บ Brisbane Pain Support Group for Young People – contact secretary@painmanagement.org.au
Web Sites:
NEW ๐บ Young Pain Health
๐บ Persistent Pain Management – Queensland Health
๐บ ACI Pain Network – includes PainBytes
๐บ Tame the Beast
๐บ The Mysterious Science of Pain – video
๐บ Head to Health (Commonwealth) โ centralised bank of online digital programs and apps
๐บ SickKids Online Paediatric Pain Curriculum
๐บ Understanding Pain: Brainman Videos (Youtube)
๐บ Persistent Pain โ Queensland Health Website
๐บ Australian Pain Management Association (APMA) โ not-for-profit support group for people with persistent pain.
๐บ Pain Australia
๐บ Pain Australia: Searchable Directory of Services
๐บ National Pain Week
๐บ The Pain Toolkit
๐บ Kids Health NZ: Chronic Or Persistent Pain
๐บ Creative Healing for Youth in Pain – Resources page
๐บ Pain Story Podcast – Gianluca’s Story (paediatric)
๐บ NZ Pain Video – Long cartoon explanation
Condition Specific Sites:
๐บ Musculoskeletal Australia
๐บ Encouraging good mental health in children with a chronic musculoskeletal condition (YouTube video)
๐บ Pelvic Floor First
Webinar Recordings:
๐บ Positive Parenting your Young Person with Chronic Pain
๐บ Dealing with Flares and Fatigue – February 2022
๐บ Pain Week Webinar, July 2021: Children and Adolescent Persistent Pain: Management and Teamwork – webinar recording here; summary notes here
Apps:
๐บ Recommended Apps to help manage persistent pain
๐บ Curable – an app for adults but may be suitable for older young people
Articles:
๐บ Pain Kete (Starship Child Health)
๐บ What are Functional Pain Disorders?
Other Programs:
๐บ Youth Pain Course – online course for 12 – 17-year-olds
๐บ The Comfort Ability – face-to-face and online pain management programs from Boston Children’s Hospital
This is a growing resource list – suggestions welcome! Please email tonya@skip.org.au